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Attention-deficit/hyperactivity disorder: parent/carer perceptions of barriers to healthcare access

Emma Rezel-Potts1, Maria Kordowicz2, Johnny Downs3

  • 1School of Population Health and Environmental Sciences, King's College London, London, UK emma.rezel-potts@kcl.ac.uk.

Archives of Disease in Childhood
|March 20, 2021
PubMed

Insights

Parents of children with attention-deficit/hyperactivity disorder (ADHD) experience difficulties accessing services. They feel overlooked by professionals and propose solutions like early information on navigating the ADHD support system.

Area of Science:

  • Pediatric Healthcare
  • Child Psychology
  • Public Health

Background:

  • Children and young people (CYP) with attention-deficit/hyperactivity disorder (ADHD) often face diagnostic delays and barriers to accessing interventions.
  • Limited research exists on how parents and carers perceive these barriers to ADHD care.

Purpose of the Study:

  • To explore the perspectives of parents and carers of CYP with ADHD regarding barriers to accessing healthcare services.
  • To identify potential solutions for improving service accessibility for children with ADHD.

Main Methods:

  • Qualitative study involving focus groups with parents and carers of CYP with ADHD in South London.
  • Thematic analysis using a hybrid inductive/deductive approach was applied to the collected data.

Main Results:

  • Parents reported challenges navigating a fragmented, multiagency system for their child's ADHD and broader health needs.
  • Participants felt judged and overlooked by healthcare professionals, impacting their child's well-being and progress.
  • Proposed solutions included providing early information to parents on service navigation for recognized ADHD symptoms.

Conclusions:

  • Parents/carers desire improved continuity of care within and across different services for their children with ADHD.
  • Parents and carers are crucial stakeholders for developing interventions to enhance access to care for CYP with ADHD.
Abstract

Keywords:
adolescent healthchild psychiatryhealth services researchqualitative research

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