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A world away and here at home: a prioritisation framework for US international patient programmes
Emily Berkman1,2,3, Jonna Clark4,2,3, Douglas Diekema2,3,5
1Division of Pediatric Critical Care Medicine, University of Washington School of Medicine, Seattle Children's Hospital, Seattle, Washington, USA emily.berkman@seattlechildrens.org.
Insights
US children's hospitals face ethical dilemmas when treating international patients alongside domestic needs. The study proposes a framework to balance institutional duties to local and global child populations, prioritizing care based on need and resource availability.
Area of Science:
- Medical Ethics
- Pediatric Healthcare
- Healthcare Policy
Background:
- International patient programs are growing in US children's hospitals, offering specialized care unavailable elsewhere.
- These programs operate within a system facing unmet domestic healthcare needs for many American children.
- Children's hospitals often have a dual mandate: serving a local population and providing specialized services.
Purpose of the Study:
- To explore the ethical obligations of US children's hospitals towards international patients.
- To examine how to balance the duty to local populations with a broader duty to children globally.
- To develop a framework for prioritizing access for international pediatric patients.
Main Methods:
- Analysis of US children's hospitals with societal mandates and specialized services.
- Case-based evaluation of clinical and contextual features influencing ethical claims and access priority.
- Development of a general prioritization framework for international patient care.
Main Results:
- Children's hospitals face complex ethical considerations in allocating resources between domestic and international patients.
- Prioritization must balance institutional mandates, regional responsibilities, and global health equity.
- A framework is proposed to guide decision-making in cases involving international pediatric patients.
Conclusions:
- US children's hospitals have a potential ethical duty to care for international children, especially where access is deficient.
- Balancing this duty with regional obligations requires careful consideration of strained resources.
- A structured ethical framework is necessary for equitable prioritization of international pediatric patients.
Abstract:
Programmes serving international patients are increasingly common throughout the USA. These programmes aim to expand access to resources and clinical expertise not readily available in the requesting patients' home country. However, they exist within the US healthcare system where domestic healthcare needs are unmet for many children. Focusing our analysis on US children's hospitals that have a societal mandate to provide medical care to a defined geographic population while simultaneously offering highly specialised healthcare services for the general population, we assume that, given their mandate, priority will be given to patients within their catchment area over other patients. We argue that beyond prioritising patients within their region and addressing inequities within US healthcare, US institutions should also provide care to children from countries where access to vital medical services is unavailable or deficient. In the paper, we raise and attempt to answer the following: (1) Do paediatric healthcare institutions have a duty to care for all children in need irrespective of their place of residence, including international patients? (2) If there is such a duty, how should this general duty be balanced against the special duty to serve children within a defined geographical area to which an institution is committed, when resources are strained? (3) Finally, how are institutional obligations manifest in paradigm cases involving international patients? We start with cases, evaluating clinical and contextual features as they inform the strength of ethical claim and priority for access. We then proceed to develop a general prioritisation framework based on them.
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