Participation Measures for Infants and Toddlers Aged Birth to 23 Months: A Systematic Review

Chelsea A Mobbs1, Alicia J Spittle2,3, Leanne M Johnston1

  • 1School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Australia.

Insights

Measuring infant and toddler participation is challenging. This review identified few measures, with the Child Engagement in Daily Life (CEDL) measure showing the strongest psychometric properties for assessing attendance and involvement.

Area of Science:

  • Pediatrics
  • Developmental Psychology
  • Rehabilitation Science

Background:

  • Participation is a crucial health outcome for young children.
  • Current understanding and measurement of participation in infants and toddlers (birth to 23 months) remain limited.
  • The family of Participation-Related Constructs (fPRC) provides a framework for understanding participation.

Purpose of the Study:

  • To identify and evaluate the psychometric properties of existing participation measures for infants and toddlers.
  • To assess these measures against the fPRC, specifically 'attendance' and 'involvement'.
  • To guide future research in developing robust participation assessment tools for this age group.

Main Methods:

  • A systematic search of four electronic databases was conducted.
  • Inclusion criteria focused on English-language measures quantifying 'attendance' and/or 'involvement' for children aged 0-23 months.
  • Psychometric quality was assessed using the COSMIN checklist.

Main Results:

  • Four measures met the inclusion criteria: CEDL, DAIS, ToP, and YC-PEM.
  • All measures assessed 'attendance'; three also assessed 'involvement'.
  • Psychometric properties ranged from unknown to moderate for validity and reliability, with the CEDL demonstrating the strongest evidence.

Conclusions:

  • There is a scarcity of psychometrically sound participation measures for infants and toddlers.
  • Further research is necessary to develop and validate measures that capture both 'attendance' and 'involvement' in this population.
  • Improved measurement tools are essential for understanding and promoting child participation.
Abstract

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