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Often, psychologists develop surveys as a means of gathering data. Surveys are lists of questions to be answered by research participants, and can be delivered as paper-and-pencil questionnaires, administered electronically, or conducted verbally. Generally, the survey itself can be completed in a short time, and the ease of administering a survey makes it easy to collect data from a large number of people.
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Surveying near highways, rough terrain, or power lines involves significant risks. Working along highways is particularly dangerous and requires the use of warning signs and flagmen. It is safest to avoid working directly on roads and use offsets whenever possible. When highway work is unavoidable, it must follow all safety guidelines. Surveyors should wear bright clothing, such as orange reflective vests, to ensure visibility to motorists, coworkers, and hunters. In construction zones, wearing...
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Clinical development focuses on how the drug will interact with the human body and encompasses four key phases of clinical trials, each serving a specific purpose in assessing the safety and effectiveness of new drugs. These phases overlap and build upon one another. Phase I involves a small group of healthy volunteers (typically 20-80 individuals) or, in cases where significant toxicity is expected, patients with the targeted disease, such as cancer or AIDS. The volunteers are tested for...
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Updated: Nov 11, 2025

A Familiarization Protocol Facilitates the Participation of Children with ASD in Electrophysiological Research
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Multicomponent Informed Consent with Marshallese Participants.

Rachel S Purvis1, Britni L Ayers1, Cari A Bogulski1

  • 137323University of Arkansas for Medical Sciences Northwest, Fayetteville, USA.

Journal of Empirical Research on Human Research Ethics : JERHRE
|March 29, 2021
PubMed
Summary
This summary is machine-generated.

A community-based participatory research approach empowered Marshallese participants, with 89.6% agreeing to all data use options in a novel multicomponent consent process for health disparities research.

Keywords:
Pacific Islanderscommunity-based participatory researchconsentresearch ethicssecondary health data

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Area of Science:

  • Community-based participatory research
  • Health disparities research
  • Indigenous health

Background:

  • Pacific Islanders, particularly Marshallese, are underrepresented in US health research.
  • Growing Pacific Islander population necessitates inclusive health research.
  • Need for culturally appropriate research methods and participant engagement.

Purpose of the Study:

  • To engage Marshallese stakeholders using a community-based participatory research (CBPR) approach.
  • To pilot a multicomponent consent process for health disparities research.
  • To increase the participation of underrepresented populations in health research.

Main Methods:

  • Employed a CBPR approach to build an academic-community research collaborative.
  • Developed and pilot-tested a multicomponent consent process.
  • Provided consent forms in English and Marshallese using plain language.

Main Results:

  • 89.6% of participants agreed to all additional data use options.
  • Only 10.4% of participants consented to some but not all options.
  • Demonstrated high participant acceptance of the multicomponent consent process.

Conclusions:

  • A CBPR approach can effectively engage indigenous communities in health research.
  • A multicomponent consent process is feasible and well-accepted by Marshallese participants.
  • This model can inform consent procedures for other underrepresented populations.