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Published on: June 9, 2018
An Australian Neuro-Palliative perspective on Huntington's disease: a case report
Rajvi Shah1, Sarah Cm Lee2, Rupert B Strasser2
1Calvary Health Care Bethlehem, Melbourne, Australia. rajvishah06@gmail.com.
Background:
Huntington's Disease (HD) is an incurable, progressive neuro-degenerative disease. For patients with HD access to palliative care services is limited, with dedicated Neuro-Palliative Care Services rare in Australia. We discuss the experiences of and benefits to a patient with late-stage HD admitted to our Neuro-Palliative Care service.
Case Presentation:
We present the case of a patient with a 16-year history of HD from time of initial genetic testing to admission to our Neuro-Palliative Care service with late-stage disease.
Conclusions:
Given the prolonged, fluctuating and heterogenous HD trajectory, measures need to be implemented to improve earlier access to multi-specialty integrative palliative care services. Given the good outcomes of our case, we strongly advocate for the role of specialised Neuro-Palliative Care services to bridge the gap between clinical need and accessibility.
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