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Psychometric Properties of the POAGTS: A Tool for Understanding Parents' Perceptions Regarding Autism Spectrum
Shixi Zhao1, Wei-Ju Chen2, Oi-Man Kwok3
1Department of Health, Exercise & Sports Sciences, University of New Mexico, Albuquerque, NM 87131, USA.
Summary
A new survey, the Perceptions of Autism Spectrum Disorder Genetic Testing Survey (POAGTS), helps parents weigh genetic testing pros and cons. The POAGTS is a reliable tool for understanding parental concerns about genetic testing for Autism Spectrum Disorder.
Area of Science:
- Genetics
- Pediatrics
- Psychology
Background:
- Autism Spectrum Disorder (ASD) prevalence is increasing, leading to more genetic testing referrals for children.
- Parents need tools to understand the benefits and drawbacks of genetic testing for ASD.
- Existing tools may not fully capture parental perceptions and concerns.
Purpose of the Study:
- To develop and validate the first theory-based survey, the Perceptions of ASD Genetic Testing Survey (POAGTS).
- To assist healthcare providers in understanding parents' views on genetic testing for ASD.
- To assess the psychometric properties of the POAGTS.
Main Methods:
- Developed the POAGTS, a theory-based survey.
- Pre-tested and formally tested the survey's psychometric properties.
- Collected data from 308 parents of children with ASD who were undecided about genetic testing.
Main Results:
- The POAGTS demonstrated psychometrically sound properties.
- The survey exhibited acceptable data reliability and validity.
- The eight scales of the POAGTS were found to be reliable and valid.
Conclusions:
- The POAGTS is a reliable and valid tool for assessing parental perceptions of ASD genetic testing.
- Further research is needed to confirm POAGTS applicability across diverse populations.
- Refining the POAGTS into a shorter, user-friendly version is recommended.
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