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Paediatricians' Views on Pain in Children with Profound Intellectual and Multiple Disabilities
Lucie Petigas1, Christopher J Newman2
1Faculty of Biology and Medicine, University of Lausanne, 1011 Lausanne, Switzerland.
Insights
Pediatricians recognize that children with profound intellectual and multiple disabilities (PIMD) experience significant pain, yet face challenges in assessment and treatment due to communication barriers. Enhanced training is crucial for improving pain management in this vulnerable population.
Area of Science:
- Pediatrics
- Disability Studies
- Pain Management
Background:
- Pain is a common and significant issue for children with profound intellectual and multiple disabilities (PIMD).
- Identifying and managing pain in PIMD is challenging for physicians due to limited communication abilities in these children.
Purpose of the Study:
- To explore pediatricians' views on the experience and management of pain in children with PIMD.
- To identify barriers to effective pain assessment and treatment in this population.
Main Methods:
- An online survey was distributed to 480 pediatricians in the canton of Vaud, Switzerland.
- 121 responses were collected, representing a 25.5% participation rate.
Main Results:
- Over 90% of responding pediatricians believe pain in PIMD is under-assessed and undertreated.
- Key barriers identified include communication limitations, assessment difficulties, and lack of specialized knowledge or experience.
- Pediatricians generally agree that children with PIMD experience pain comparable to typically developing children.
Conclusions:
- Pediatricians hold complex views on pain in PIMD, highlighting a need for improved understanding and management strategies.
- Professional education and training are essential to enhance pediatricians' confidence and competence in addressing pain in children with PIMD.
Abstract:
Pain is a frequent issue in children with profound intellectual and multiple disabilities (PIMD). Its identification and treatment can prove highly challenging for primary care physicians, mainly because of the children's limited communication abilities. We used an online survey to explore paediatricians' views regarding the experience and management of pain in children with PIMD and invited 480 professionals working in the canton of Vaud, Switzerland, to take part. We received 121 responses (participation rate 25.5%). A large majority of respondents provided care to children with PIMD. All paediatricians considered that these children feel pain at least as much as typically developing children. However, paediatricians had mixed views on their tolerance to pain. More than 90% held the view that their pain is under-assessed and undertreated. The principal barriers they reported to appropriate management were communication limitations with the child, difficulties in pain assessment, lack of knowledge about children with disabilities and lack of experience. Paediatricians have complex opinions regarding how children with PIMD experience pain and how to manage this problem. Professional education and training on the specificities of children with PIMD, including how to address their pain, seem necessary to foster paediatricians' ability and confidence in approaching this complex issue.
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