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Single-centre survey of parents regarding the hidden burden of paediatric flexible bronchoscopy

Jayne A Swift1, William D Carroll1,2, Francis J Gilchrist1,2

  • 1Staffordshire Children's Hospital at Royal Stoke, University Hospitals of North Midlands NHS Trust, Stoke-on-Trent, UK.

BMJ Paediatrics Open
|April 5, 2021
PubMed

Insights

Parents experience significant burden from paediatric flexible bronchoscopy, including worry, missed school days for children, and time off work for parents. Financial costs for sibling care and travel also add to the burden.

Area of Science:

  • Pediatric Pulmonology
  • Healthcare Management

Background:

  • Paediatric flexible bronchoscopy is a safe procedure with minimal adverse events.
  • Parents often report a significant burden associated with their child undergoing this procedure.

Purpose of the Study:

  • To assess the parental burden associated with paediatric flexible bronchoscopy.
  • To identify specific areas of burden experienced by parents.

Main Methods:

  • Conducted 25 semi-structured interviews with parents of children who recently underwent flexible bronchoscopy.
  • Qualitative analysis of parental experiences and reported burdens.

Main Results:

  • Parental worry was common despite clear explanations of the procedure.
  • Children missed a median of 2 days of school/nursery.
  • Parents took a median of 2 days of carer's leave.
  • Additional financial burdens included sibling childcare, travel, and parking costs.

Conclusions:

  • Paediatric flexible bronchoscopy imposes considerable practical and financial burdens on families.
  • Clinicians should proactively address these burdens during pre-procedure counseling to improve the family experience.

Keywords:
qualitative research

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