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DigiKnowIt News: Educating youth about pediatric clinical trials using an interactive, multimedia educational website
Alison E Parker1, Tracy M Scull1, Abigail M Morrison1
1innovation Research & Training, Durham, NC, USA.
Insights
An interactive website, DigiKnowIt News, improved children's knowledge and confidence regarding clinical trials. This educational tool shows promise for increasing pediatric clinical trial participation.
Area of Science:
- Pediatric Health Research
- Clinical Trial Education
- Health Communication
Background:
- Pediatric clinical trials are crucial for developing child-specific treatments.
- Recruitment challenges often hinder the progress of pediatric clinical trials.
- Engaging educational tools are needed to inform children about clinical trial participation.
Purpose of the Study:
- To evaluate the effectiveness of the interactive multimedia website, DigiKnowIt News, in educating children about clinical trials.
- To assess the impact of the website on children's knowledge, attitudes, beliefs, and self-efficacy regarding clinical trials.
- To measure participant satisfaction with the DigiKnowIt News website.
Main Methods:
- A randomized controlled trial with 91 pediatric participants (mean age 10.92 years).
- Participants were assigned to an intervention group (access to DigiKnowIt News) or a wait-list control group.
- Knowledge, attitudes, beliefs, and self-efficacy were measured pretest and posttest (1 week later).
Main Results:
- The intervention group demonstrated significantly greater knowledge about clinical trials compared to the control group.
- Participants in the intervention group reported higher confidence in participating in clinical trials.
- High levels of participant satisfaction were reported for the DigiKnowIt News website.
Conclusions:
- An interactive, multimedia educational website can effectively enhance children's understanding and confidence related to clinical trials.
- DigiKnowIt News shows potential as a tool to improve factors influencing pediatric clinical trial recruitment.
- Educational interventions are valuable for addressing barriers to participation in pediatric research.
Abstract:
Pediatric clinical trials allow for the testing of appropriate and effective treatments for children. However, some challenges exist with recruitment. This study examined the effectiveness of DigiKnowIt News, an interactive, multimedia website (which includes activities, videos, and comic books) designed to educate children about clinical trials. A randomized controlled trial was conducted in 2018 with 91 participants (M age = 10.92 years; SD = 2.06). Participants were randomly assigned to intervention or wait-list control groups and completed questionnaires at pretest and posttest (1 week later) about their knowledge, attitudes, beliefs about clinical trials, and self-efficacy for participating in clinical trials. Participants in the intervention group received access to DigiKnowIt News between pretest and posttest and completed a satisfaction questionnaire at posttest. At the end of the study, participants in the wait-list control group were offered the option to use the website and complete a satisfaction questionnaire. At posttest, participants in the intervention group, compared to participants in the wait-list control group, had more knowledge about clinical trials and more reported confidence for participating in clinical trials. Participants reported high levels of satisfaction with DigiKnowIt News. The findings suggest that an educational website can improve factors related to increasing rates of participation in clinical trials.
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