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"What Matters to Me": What pediatric stem cell transplant patients want their providers to know

Sarah Brand McCarthy1, Sarah J Tarquini2, Brittany Metcalf3

  • 1Department of Psychology and Psychiatry, Mayo Clinic, Rochester, Minnesota, USA.

Journal of Psychosocial Oncology
|April 26, 2021
PubMed

Insights

Seriously ill children want to share what matters to them. The "What Matters to Me" (WMTM) tool helps pediatric patients communicate their needs and preferences to healthcare providers, improving engagement.

Area of Science:

  • Pediatric Healthcare Communication
  • Patient-Centered Care
  • Child Psychology

Background:

  • Engaging pediatric patients in healthcare discussions improves outcomes.
  • Seriously ill children have unique needs and perspectives.
  • Effective communication is crucial in pediatric oncology and transplant care.

Purpose of the Study:

  • To explore what seriously ill children want to communicate to their healthcare providers.
  • To assess the utility of the "What Matters to Me" (WMTM) tool.
  • To understand pediatric patients' perspectives on their care.

Main Methods:

  • Content analysis of completed "What Matters to Me" tools.
  • Study involved 21 pediatric patients on a stem cell transplant unit.
  • Direct content analysis was employed.

Main Results:

  • Three key themes emerged: personal identity, communication preferences, and care delivery preferences.
  • Children and adolescents actively identified and shared what is important to them.
  • Patients expressed willingness to engage in dialogue about their healthcare.

Conclusions:

  • Pediatric patients with serious illnesses are willing and able to share their priorities with care teams.
  • The WMTM tool offers a systematic method for pediatric units to facilitate patient-provider communication.
  • Incorporating patient-voiced priorities can enhance engagement and care delivery in pediatric settings.
Abstract

Keywords:
Adolescent/young adultbehavioral healthinterventionspediatricqualitative

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