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Summary
This summary is machine-generated.

A new community-based research network (CBRN) effectively connects aging and disability organizations. This network supports research for people aging with long-term physical disabilities (PAwLTPD), addressing a critical gap in evidence-based programs.

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Area of Science:

  • Gerontology and Disability Studies
  • Community-Based Participatory Research
  • Health Services Research

Background:

  • People aging with long-term physical disabilities (PAwLTPD) require long-term support services (LTSS) for independence.
  • The current LTSS system is fragmented, lacking communication between aging and disability organizations.
  • There is a significant absence of evidence-based LTSS programs tailored for PAwLTPD.

Purpose of the Study:

  • To establish a community-based research network (CBRN) to address the lack of effective LTSS programs for PAwLTPD.
  • To adapt the practice-based research network (PBRN) model for collaboration between aging and disability organizations.
  • To foster communication and research capacity within community-based organizations serving PAwLTPD.

Main Methods:

  • Recruited community-based organizations serving PAwLTPD in Missouri to join the CBRN.
  • Implemented a formative process evaluation after one year to assess network effectiveness.
  • Utilized the practice-based research network (PBRN) model as a framework for network development.

Main Results:

  • Nine community-based organizations joined the CBRN, including Centers for Independent Living (CILs) and Area Agencies on Aging (AAAs).
  • Seven network meetings were held, providing educational opportunities and launching an initial research study.
  • Formative evaluation indicated that CBRN members found participation beneficial.

Conclusions:

  • The PBRN model is a feasible framework for community-based organizations.
  • The CBRN facilitates communication and collaboration between aging and disability agencies.
  • The network supports research initiatives to meet the needs of PAwLTPD.