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Published on: February 28, 2012
Implantable cardioverter defibrillator devices: when, how and who should discuss deactivation with patients: a
Megan Freemantle1, Fliss Murtagh2
1Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK meganfreemantle@gmail.com.
Insights
Discussions about deactivating implantable cardioverter defibrillators (ICDs) are inconsistently discussed, impacting end-of-life care. Proactive education for professionals and patients is needed for comfortable dying.
Area of Science:
- Cardiology
- Palliative Care
- Medical Ethics
Background:
- Implantable cardioverter defibrillators (ICDs) treat life-threatening arrhythmias but may prolong dying.
- Aging patients with multimorbidity may benefit from deactivation discussions.
- Current practices often neglect deactivation planning, leading to potential patient distress.
Approach:
- Systematic review of studies on ICD deactivation discussions (2010-2021).
- Searched MEDLINE, EMBASE, CINAHL, and PsycInfo for relevant English-language publications.
- Synthesized data deductively to identify key themes in deactivation discussions.
Key Points:
- Five themes emerged: timing, initiation, advance directives, barriers, and facilitators of deactivation discussions.
- Despite guidelines, consistent deactivation conversations are lacking.
- Professional awareness and communication training are insufficient.
Conclusions:
- Proactive clinical and policy initiatives are essential for educating professionals, patients, and families about ICD deactivation.
- Improved communication can prevent distress and promote a comfortable dying process.
- Addressing barriers and enhancing facilitators is crucial for patient-centered end-of-life care.
Background:
Implantable cardioverter defibrillators (ICDs) are used to treat life-threatening cardiac arrhythmias and prevent sudden cardiac arrest. As recipients age they may develop greater risk of dying as a result of progressive multimorbidity rather than sudden cardiac death. Defibrillation shocks may prolong an uncomfortable dying process. Deactivation of the defibrillator would prevent this, yet is not always discussed and planned.
Aim:
To systematically review published evidence on ICD deactivation discussions and make recommendations on when, how and who should facilitate effective and patient-centred deactivation discussions.
Methods:
Using standard systematic review methods, MEDLINE, EMBASE, CINAHL and PsycInfo were searched for studies published in the English language between 2010 and March 2021. Inclusion criteria were studies of adults (≥18 years) and including discussions on ICD deactivation and/or related communication. Included studies were independently reviewed, data extracted, quality assessed and data synthesised using a deductive approach.
Results:
Of the 8893 articles identified, 22 papers met the inclusion criteria. Deductive approach led to identification of five main themes: (1) timing of ICD deactivation discussions, (2) initiation of deactivation discussions, (3) advance directives, (4) barriers to discussions and (5) facilitators of discussions.
Conclusions:
Despite available guidelines, conversations on device deactivation are not being undertaken consistently. Evidence suggests lack of professional awareness of guidelines and limited training in communication skills. To prevent distress and promote comfortable dying, there needs to be a proactive clinical and policy initiative in the education of both professionals and patients and their relatives about device deactivation.
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