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Using community-led development to build health communication about rheumatic heart disease in Aboriginal children: a
Alice G Mitchell1, Joseph Diddo2, Alistair Djalolba James2
1Menzies School of Health Research, Charles Darwin University, Northern Territory.
Insights
Aboriginal teachers developed culturally relevant lessons on rheumatic heart disease (RHD) for children in their home languages. This community-led approach improved understanding and attitudes towards RHD prevention and treatment.
Area of Science:
- Public Health
- Indigenous Health
- Health Communication
Background:
- High prevalence of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) in Aboriginal children in northern Australia.
- Low family understanding of ARF and RHD negatively impacts children's health and prevention efforts.
- Need for improved health communication strategies tailored to Indigenous communities.
Purpose of the Study:
- To develop and evaluate a community-led health communication strategy for RHD prevention among Aboriginal children.
- To empower Aboriginal teachers to deliver RHD education in local languages.
- To leverage community data and Indigenous Knowledge for health interventions.
Main Methods:
- Aboriginal teachers created RHD educational lessons in four Aboriginal languages.
- Lessons were developed using principles of community-led development and local Indigenous Knowledge.
- Community-level RHD data access catalyzed the creation of culturally coherent teaching resources.
Main Results:
- Evaluation highlighted the importance of collective work, Indigenous Knowledge, and metaphors.
- Children demonstrated improved responses and attitudes towards skin infections and RHD treatment.
- Language teachers utilized social networks for information dissemination, leading to interagency collaboration for RHD prevention.
Conclusions:
- Effective health communication for RHD must incorporate Indigenous Knowledge, language, and culture.
- Collaborative leadership and respect for Indigenous data sovereignty are crucial for addressing high RHD rates.
- Community-led initiatives are vital for improving health outcomes in Indigenous populations.
Objective:
A high prevalence of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) among Aboriginal children in northern Australia is coupled with low understanding among families. This has negative impacts on children's health, limits opportunities for prevention and suggests that better health communication is needed.
Methods:
During an RHD echocardiography screening project, Aboriginal teachers in a remote community school created lessons to teach children about RHD in their home languages, drawing on principles of community-led development. Access to community-level RHD data, previously unknown to teachers and families, was a catalyst for this innovative work. Careful, iterative discussions among speakers of four Aboriginal languages ensured a culturally coherent narrative and accompanying teaching resources.
Results:
The evaluation demonstrated the importance of collective work, local Indigenous Knowledge and metaphors. As a result of the lessons, some children showed new responses and attitudes to skin infections and their RHD treatment. Language teachers used natural social networks to disseminate new information. A community interagency collaboration working to prevent RHD commenced. Conclusions and implications for public health: Action to address high rates of RHD must include effective health communication strategies that value Indigenous Knowledge, language and culture, collaborative leadership and respect for Indigenous data sovereignty.
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