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Pilot project of psychological services integrated into a pediatric epilepsy clinic: Psychology Adding Value -
Catriona George1, Suzanne A Felix1, Ailsa McLellan2
1Royal Hospital for Children and Young People, 50 Little France Crescent, Edinburgh BioQuarter, Edinburgh EH16 4TJ, UK.
Insights
Children and young people with epilepsy (CYPwE) often face mental health challenges. A new screening protocol, PAVES, identifies these issues early, offering timely interventions to improve long-term outcomes.
Area of Science:
- Pediatric Neurology
- Child and Adolescent Psychiatry
- Developmental Psychology
Background:
- Children and young people with epilepsy (CYPwE) are at higher risk for social, emotional, behavioral, and learning difficulties.
- These challenges, if unaddressed early, can negatively impact quality of life and long-term psychosocial development.
- Early identification and intervention are crucial for mitigating these adverse effects.
Purpose of the Study:
- To develop and evaluate a screening protocol and early intervention pathway for mental health difficulties in CYPwE.
- To address the vulnerability of CYPwE to psychosocial challenges.
- To improve long-term psychosocial outcomes for this population.
Main Methods:
- The Strengths and Difficulties Questionnaire (SDQ) was administered to CYPwE and their parents.
- A traffic light system was implemented to categorize levels of concern.
- A pathway for stepped early intervention (PAVES) was established based on screening results.
Main Results:
- 53% of screened CYPwE exhibited previously unidentified elevated mental health difficulties.
- These individuals were offered access to appropriate early intervention services.
- Initial feedback indicated high feasibility and acceptability of the PAVES pathway among young people, parents, and clinicians.
Conclusions:
- The PAVES approach facilitates early identification and intervention for mental health difficulties in CYPwE.
- This early intervention has the potential to enhance long-term psychosocial outcomes.
- The PAVES model may be adaptable to other pediatric populations in future research.
Rationale:
Children and young people with epilepsy (CYPwE) are particularly vulnerable to developing social, emotional, behavioral, and learning difficulties, which, if not identified or addressed at an early stage, can impact adversely on quality of life and long-term psychosocial outcomes. This paper describes the development of a screening protocol and a pathway of early, 'stepped' intervention, which aims to address this issue, together with initial outcomes.
Methods:
The Strengths and Difficulties Questionnaire (SDQ) was completed by CYPwE and their parents prior to routine epilepsy clinic appointments. A traffic light system was devised to indicate the reported level of concern and a potential route through the early intervention pathway.
Results:
Of those CYPwE screened, 53% were found to be experiencing elevated levels of mental health difficulties, which had not previously been identified, and had the opportunity to access an appropriate early intervention. Initial feedback on the PAVES pathway has been positive, with high levels of feasibility and acceptability indicated by young people, parents, and clinicians.
Conclusions:
The PAVES approach enables mental health difficulties to be identified and appropriate intervention accessed at an early stage, potentially improving long-term psychosocial outcomes for CYPwE. In addition, if found to be effective in larger trials, PAVES has potential to be adapted and generalized to other populations.
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