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Institutional Review Board Preparedness for Disaster Research: a Practical Approach
Joan P Packenham1, Richard Rosselli2, Alice Fothergill3
1Office of Human Research Compliance, Clinical Research Branch and Division of Intramural Research, National Institute of Environmental Health Sciences, 111 T.W. Alexander Dr., Mail Drop CRU-02, Research Triangle Park, Durham, NC, 27709, USA. packenhm@niehs.nih.gov.
Institutional Review Boards (IRBs) need better preparedness for reviewing disaster research. This article offers approaches to enhance IRB review of studies on disaster impacts and survivor health outcomes.
Area of Science:
- Disaster research
- Public health
- Human research protection
Background:
- Disasters are increasing, necessitating research on environmental and health impacts.
- Government agencies show growing interest in disaster research.
- Institutional Review Boards (IRBs) face challenges reviewing disaster research protocols due to limited experience.
Purpose of the Study:
- To describe approaches for enhancing IRB preparedness in reviewing disaster research.
- To address the growing need for ethical review of studies involving disaster survivors.
Main Methods:
- Literature review on current practices and ethical considerations in disaster research.
- Analysis of human research protection challenges in disaster contexts.
Main Results:
- There is a lack of established best practices and guidance for IRBs reviewing disaster research.
- Disaster research raises ethical concerns regarding the welfare of survivors, responders, and cleanup personnel.
- A systematic approach is needed to assess human research protection issues post-disaster.
Conclusions:
- IRBs require specific training and resources to effectively review disaster research.
- Collaborative efforts between IRBs and investigators are crucial for protecting participants.
- Developing new frameworks for IRB review is essential for ethical disaster research.
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