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Community Capacity to Provide Mental/Behavioral Health Services for People With IDD Transitioning From State-Operated
1Amie Lulinski and Tamar Heller, University of Illinois at Chicago.
Intellectual and Developmental Disabilities
|May 24, 2021
Summary
People with intellectual and developmental disabilities transitioning to community settings are less likely to return to institutions if they are older, have lower IQs, and receive support from agencies with behavioral health technical assistance.
Area of Science:
- Intellectual and Developmental Disabilities Research
- Healthcare Services Research
- Social Work and Community Services
Background:
- State-operated institutions historically served individuals with intellectual and developmental disabilities (IDD).
- Deinstitutionalization initiatives aim to transition individuals with IDD into community-based settings.
- Ensuring successful community integration and preventing re-institutionalization are critical goals.
Purpose of the Study:
- To examine the factors influencing successful community transitions for individuals with IDD.
- To assess the capacity of community-based providers to support individuals with IDD post-institutionalization.
- To identify characteristics of individuals who return to institutions after transitioning to community settings.
Main Methods:
- Survey data collected from 65 community-based residential support and service agencies.
- Analysis of individual-level data for 2,499 individuals with IDD transitioning from institutions.
- Comparison of characteristics between individuals who returned to institutions and those who remained in community settings.
Main Results:
- Individuals returning to institutions were younger, had higher IQ scores, and were more likely to have psychiatric diagnoses.
- Shorter previous institutional stays and transitions to larger community settings were associated with re-institutionalization.
- Receiving services from agencies with behavioral health technical assistance was linked to remaining in community settings.
Conclusions:
- Community-based providers face challenges in supporting individuals with complex needs transitioning from institutions.
- Younger age, higher cognitive ability, psychiatric diagnoses, and setting size are risk factors for re-institutionalization.
- Targeted behavioral health technical assistance for agencies may improve community placement stability for individuals with IDD.
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