Shared-care model for complex chronic haematological malignancies.

Area of Science:

• Hematology
• Oncology
• Public Health

Background:

• Myeloproliferative neoplasms (MPNs) are rare chronic leukemias requiring specialized care.
• Limited expertise in MPNs is concentrated in specialist centers, leading to patient travel burdens and reduced quality of life.
• Existing care models pose financial and logistical challenges for patients and caregivers.

Purpose of the Study:

• To describe the implementation and experience of a shared-care model for MPN patients.
• To reduce the burden on patients by providing care closer to home.
• To maintain high-quality, patient-centered care through collaboration.

Main Methods:

• Implementation of a shared-care model involving collaboration with local healthcare providers.
• Ongoing management and supportive care delivery for MPN patients within the shared-care framework.
• Evaluation of the model's impact on patient travel burden and quality of care.

Main Results:

• The shared-care model successfully decreased patient travel burden.
• High-quality, patient-centered care was maintained through the collaborative approach.
• The model facilitates accessible care for MPN patients within their local communities.

Conclusions:

• Shared-care models can effectively manage rare chronic diseases like MPNs.
• This approach enhances patient accessibility to specialized care while reducing logistical challenges.
• The model is potentially adaptable for other rare chronic hematological malignancies and diseases.