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End of Life Intervention Program During COVID-19 in Vall d'Hebron University Hospital
Anna Beneria1,2, Eudald Castell-Panisello1, Marta Sorribes-Puertas1
1Department of Psychiatry, Vall d'Hebron Hospital Universitari, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain.
Insights
This study describes an End of Life (EOL) program implemented during COVID-19 to support families facing death and bereavement. The program aimed to mitigate Prolonged Grief Disorder (PGD) by providing psychosocial care during the pandemic.
Area of Science:
- Healthcare Management
- Psychology
- Public Health
Background:
- COVID-19 pandemic significantly impacted healthcare systems and the experience of death, dying, and bereavement.
- Mitigation measures, such as social distancing, hindered families from being present during End of Life (EOL) situations.
- Hospitals became primary sites for EOL care under unprecedented conditions, increasing the risk of Prolonged Grief Disorder (PGD).
Purpose of the Study:
- To describe an End of Life (EOL) intervention program implemented during the COVID-19 pandemic at Vall d'Hebron University Hospital (HUVH).
- To present the program's structure, operational circuit, and functional components.
- To report descriptive analyses of the patient-family sample and the psychosocial interventions provided.
Main Methods:
- A multidisciplinary team, including health social workers (HSW) and clinical psychologists (CP), coordinated EOL care with medical and nursing staff.
- The study included 359 relatives of 219 EOL patients admitted to HUVH during the COVID-19 pandemic.
- Inclusion criteria encompassed families experiencing EOL situations, irrespective of the patient's COVID-19 diagnosis.
Main Results:
- The EOL intervention program was activated in 85% of EOL situations, attending 219 families.
- Of the families attended, 55.3% were related to COVID-19 patients and 44.7% to patients with other pathologies.
- The program facilitated 78% of relatives being able to say goodbye to their loved ones, while also noting an emotional impact on the EOL team.
Conclusions:
- The implemented EOL program addressed family perceptions and COVID-19-specific challenges during end-of-life care.
- There is a critical need to dignify EOL situations amidst the pandemic and provide adequate psychosocial support.
- Proactive psychosocial attention is essential to minimize future grief complications and mitigate the incidence of Prolonged Grief Disorder (PGD).
Abstract:
Introduction: The coronavirus disease 19 (COVID-19) and its consequences have placed our societies and healthcare systems under pressure. Also, a major impact on the individual and societal experience of death, dying, and bereavement has been observed. Factors such as social distancing, unexpected death or not being able to say goodbye, which might predict Prolonged Grief Disorder (PGD), are taking place. Moreover, hospitals have become a habitual place for End of Life (EOL) situations but not in the usual conditions because, for example, mitigation measures prevent families from being together with hospitalized relatives. Therefore, we implemented an EOL program with a multidisciplinary team involving health social workers (HSW) and clinical psychologists (CP) in coordination with the medical teams and nursing staff. Objectives: We aim to describe an EOL intervention program implemented during COVID-19 in the Vall d'Hebron University Hospital (HUVH). We present its structure, circuit, and functions. Descriptive analyses of the sample and the interventions that required psychological and social attention are reported. Material and methods: The total sample consists of 359 relatives of 219 EOL patients. Inclusion criteria were families cared for during the COVID-19 pandemic with family patients admitted to the HUVH in an EOL situation regardless of whether or not the patient was diagnosed with COVID-19. Results: Our program is based on family EOL care perceptions and the COVID-19 context features that hinder EOL situations. The program attended 219 families, of which 55.3% were COVID-19 patients and 44.7% had other pathologies. The EOL intervention program was activated in most of the EOL situations, specifically, in 85% of cases, and 78% of relatives were able to come and say goodbye to their loved ones. An emotional impact on the EOL team was reported. It is necessary to dignify the EOL situation in the COVID-19 pandemic, and appropriate psychosocial attention is needed to try to minimize future complications in grief processes and mitigate PGD.
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