Discharge of Medically Complex Infants and Developmental Follow-up
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Updated: Nov 3, 2025

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Jillian Connors1,2, Tomas Havranek1,2, Deborah Campbell1,2
1Division of Neonatology, Children's Hospital at Montefiore, Bronx, NY.
Insights
Infants discharged from the NICU often need ongoing care coordination. Primary care physicians are crucial for managing complex medical needs and neurodevelopmental follow-up for these medically complex infants.
Area of Science:
- Neonatology
- Pediatrics
- Healthcare Management
Background:
- Infants discharged from the Neonatal Intensive Care Unit (NICU) frequently have complex medical issues.
- Coordinated, multispecialty follow-up is essential for these medically complex infants.
- Discharge planning and care transition require early, multidisciplinary team involvement.
Purpose of the Study:
- To highlight the critical role of the primary care physician (PCP) in coordinating post-NICU care for medically complex infants.
- To emphasize the need for structured follow-up for technology-dependent infants and those at risk for neurodevelopmental impairment.
- To address the challenges in accessing specialized NICU follow-up clinics.
Main Methods:
- Review of discharge planning protocols for medically complex infants.
- Analysis of the PCP's role in coordinating subspecialty care.
- Examination of neurodevelopmental surveillance and screening requirements.
Main Results:
- Primary care physicians are central to coordinating multispecialty care for infants post-NICU discharge.
- Many infants require technology support (e.g., home oxygen, ventilators) and ongoing subspecialty management.
- Increased risk of neurodevelopmental delay necessitates longitudinal follow-up with specialists.
Conclusions:
- Effective discharge planning and care coordination are vital for medically complex infants.
- Primary care physicians must actively manage and coordinate diverse subspecialty needs.
- Early and ongoing neurodevelopmental assessment is critical for infants with a history of prematurity or critical illness.
Abstract:
At the time of discharge from the NICU, many infants have ongoing complex medical issues that will require coordinated, multispecialty follow-up. Discharge planning and transfer of care for infants with medical complexity require a multidisciplinary team effort that begins early during the NICU hospitalization. It is critical that the primary care physician is involved in this process because he or she will serve as the chief communicator and coordinator of care after discharge. Although some infants with medical complexity may be followed in specialized multidisciplinary NICU follow-up clinics, these are not universally available. The responsibility then falls to the primary care physician to coordinate with different subspecialties based on the infant's needs. Many infants with medical complexity are technology-dependent at the time of discharge and may require home oxygen, ventilators, monitors, or tube feeding. Prematurity, critical illness, and prolonged NICU hospitalization that lead to medical complexity also increase the risk of neurodevelopmental delay or impairment. As such, these infants will not only require routine developmental surveillance and screening by the primary care physician but also should be followed longitudinally by a neurodevelopmental specialist, either a developmental-behavioral pediatrician or a neonatologist with experience in neurodevelopmental assessment.
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