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Rehabilitation in Pediatric Heart Failure and Heart Transplant
Ana Ubeda Tikkanen1,2,3,4, Emily Berry5, Erin LeCount5
1Department of Pediatric Rehabilitation, Spaulding Rehabilitation Hospital, Boston, MA, United States.
Insights
Pediatric heart failure and transplant survival has improved. Individualized rehabilitation programs, including therapies and medical management, can enhance functional ability and quality of life for these patients.
Area of Science:
- Pediatric Cardiology
- Rehabilitation Medicine
- Congenital Heart Disease Management
Background:
- Survival rates for pediatric heart failure patients have significantly improved.
- Increasing complexity in pediatric heart transplant cases due to advances in congenital heart disease management.
- Heart failure and its treatments can negatively impact patients' functional status and quality of life.
Purpose of the Study:
- To explore the role of rehabilitation in improving functional ability and quality of life for pediatric heart failure and transplant patients.
- To highlight the limited but promising literature on pediatric rehabilitation interventions.
- To emphasize the potential benefits of tailored multidisciplinary rehabilitation programs.
Main Methods:
- Review of existing literature on rehabilitation interventions for pediatric heart failure and transplant patients.
- Focus on functional areas affected, including motor skills, exercise capacity, feeding, speech, and cognition.
- Emphasis on individualized, multidisciplinary approaches.
Main Results:
- Exercise training, while well-studied in adults, shows limited but promising results in pediatric populations.
- Specific rehabilitation interventions may help address complications associated with heart failure or transplant.
- Multidisciplinary programs incorporating various therapies are suggested as beneficial.
Conclusions:
- Individualized, multidisciplinary rehabilitation programs are crucial for enhancing functional status and quality of life in pediatric heart failure and transplant patients.
- These programs should integrate medical management, rehabilitation equipment, and therapies like physical, occupational, speech, and feeding.
- Further research into pediatric-specific rehabilitation interventions is warranted.
Abstract:
Survival of pediatric patients with heart failure has improved due to medical and surgical advances over the past decades. The complexity of pediatric heart transplant patients has increased as medical and surgical management for patients with congenital heart disease continues to improve. Quality of life in patients with heart failure and transplant might be affected by the impact on functional status that heart failure, heart failure complications or treatment might have. Functional areas affected might be motor, exercise capacity, feeding, speech and/or cognition. The goal of rehabilitation is to enhance and restore functional ability and quality of life to those with physical impairments or disabilities. Some of these rehabilitation interventions such as exercise training have been extensively evaluated in adults with heart failure. Literature in the pediatric population is limited yet promising. The use of additional rehabilitation interventions geared toward specific complications experienced by patients with heart failure or heart transplant are potentially helpful. The use of individualized multidisciplinary rehabilitation program that includes medical management, rehabilitation equipment and the use of physical, occupational, speech and feeding therapies can help improve the quality of life of patients with heart failure and transplant.
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