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Patients' experience one year after dialysis initiation: a lexicometric analysis
Lucile Montalescot1, Nicole Rascle2, Christian Combe3,4
1UNIV. NIMES, APSY-V, F-30021 Nîmes Cedex 1, France.
Health Psychology and Behavioral Medicine
|June 9, 2021
Summary
Dialysis initiation profoundly impacts patients, presenting significant challenges during the first year. Family support is crucial for adaptation and managing the end-stage renal disease experience.
Area of Science:
- Nephrology
- Psychology
- Sociology
Background:
- Dialysis initiation causes major life changes for patients.
- Understanding the patient experience post-dialysis initiation is crucial.
- Limited research exists on the patient journey one year after starting dialysis.
Purpose of the Study:
- To explore patients' experiences one year after starting dialysis.
- To examine the link between patient narratives and anxiety/depression symptoms.
- To identify key themes in the end-stage renal disease (ESRD) patient journey.
Main Methods:
- Semi-structured interviews with 22 patients (63.4 years avg. age, 68% male).
- Utilized the Hospital Anxiety and Depression Scale (HADS) for symptom assessment.
- Lexicometric analysis applied to interview transcripts.
Main Results:
- Identified five key themes: care experience, loss, family, routine, and meaning-making.
- Patients often felt passive regarding their medical care.
- Depressed patients discussed losses and described monitoring factually.
- Family support and integration of dialysis into daily life were vital.
Conclusions:
- The first year of dialysis is a challenging adaptation period.
- Family plays an essential role in patient adjustment to dialysis.
- Patient narratives offer insights into the psychological impact of ESRD treatment.
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