Patient-centered digital healthcare for patients undergoing breast surgery-A cross-sectional questionnaire study

The potential of digital health services has become apparent in recent years, more so now following the coronavirus disease outbreak. However, despite majority of UK population integrating digital-based platforms into their everyday life, there is low engagement with NHS digital services, citing lack of patient-centered approaches to the design of such services. As such, this cross-sectional questionnaire aims to understand the patient perspective pertaining the utility of web-based information in aiding their breast cancer pathway at a large volume tertiary breast institute.

Adult patients attending the outpatients' post-operative follow-up clinic for any breast-related surgery were included. Questionnaires were provided from 1 August 2019 to 31 December 2019, focusing on awareness of the website, usage and usefulness of information offered relating to their breast surgery journey, with opportunities for open feedback.

Of the 104 patients completed the questionnaire, 70% (n = 73) were unaware of the breast institute's website. Patients' wanted a wide range of information, including signposting to support groups and perioperative information such as patient experiences/journey on the operative day (n = 46, 44%/n = 60, 58%) and videos explaining procedures. The most frequent free text included requests for information regarding financial support and parking, and "signposting" to other support services.

Patients welcome the breast services' website, but we need to improve awareness of this resource and include more holistic information, relating not only to their diagnosis and treatment but also to practical/support services they can access to make their patient journey smoother.