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Informatics-enabled citizen science to advance health equity.

Rupa S Valdez1,2,3, Don E Detmer1, Philip Bourne4

  • 1Department of Public Health Sciences, University of Virginia, Charlottesville, Virginia, USA.

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|June 21, 2021
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Summary
This summary is machine-generated.

New informatics models can address health inequities by engaging citizens in research. This community-based approach prioritizes questions from marginalized populations for transformative health improvements.

Keywords:
citizen sciencehealth equityhealth informaticspatient engagementprecision health

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Area of Science:

  • Public Health
  • Health Informatics
  • Health Equity Research

Background:

  • The COVID-19 pandemic underscored persistent health inequities and ineffective response mechanisms.
  • Current research and clinical practices often lack large-scale patient engagement.
  • There is a need for innovative models to address these limitations.

Purpose of the Study:

  • To propose informatics-enabled citizen science as a novel approach to combat health inequities.
  • To challenge existing paradigms in research question prioritization and action.
  • To foster a democratization of informatics for inclusive health research.

Main Methods:

  • Leveraging informatics to enable citizen science participation in health research.
  • Integrating principles of community-based participatory research (CBPR).
  • Shifting research focus towards the needs of historically marginalized populations.

Main Results:

  • The proposed model aims to transform how health inequities are addressed.
  • Citizen science can lead to more relevant and impactful research questions.
  • Enhanced patient and community engagement can improve health outcomes.

Conclusions:

  • Informatics-enabled citizen science offers a transformative pathway to address health inequities.
  • Democratizing informatics, grounded in CBPR, is crucial for improving health for all populations.
  • This approach ensures that research deeply reflects the needs of marginalized communities.