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Self-Care Needs and Technology Preferences Among Parents in Marginalized Communities: Participatory Design Study.

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Technology-enabled self-care solutions are needed for parents of children with chronic conditions. Latino and non-Latino parents have different technology preferences for managing caregiving stress and needs.

Keywords:
asthmacaregivingculturally appropriate technologymarginalizationminority groupsparentsqualitative researchself-care

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Area of Science:

  • Health Technology
  • Parental Self-Care
  • Chronic Condition Management

Background:

  • Millions of parents provide unpaid care for children with chronic conditions like asthma.
  • Marginalized communities, including racial/ethnic minorities and low-income families, are disproportionately affected.
  • There's a critical need for technology-based solutions tailored to support parental self-care.

Purpose of the Study:

  • To describe and compare self-care practices, needs, and technology preferences of Latino and non-Latino parents.
  • Focus on parents of children with asthma in marginalized communities.
  • Utilize a participatory design approach.

Main Methods:

  • Employed a participatory design approach.
  • Actively engaged intended users (parents) throughout the design process.
  • Facilitated user-driven identification of needs and design ideas.

Main Results:

  • Included thirteen stakeholders in three design sessions.
  • Identified similarities in self-care practices between Latino and non-Latino parents.
  • Revealed differing technology preferences: non-Latino parents favored stress management tools (journaling, affirmations), while Latino parents preferred relaxation and entertainment-focused technologies.

Conclusions:

  • Technology interventions must consider cultural nuances beyond language for diverse populations.
  • A community partnership approach enhances inclusive design in health technology development.
  • Tailored technology solutions can better support the diverse self-care needs of parents managing childhood asthma.