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Related Experiment Videos

Withdrawing life support--the survivors.

J C Roberts1, R Snyder, C M Kjellstrand

  • 1Abbot-Northwestern Hospital, Minneapolis, Minnesota.

Acta Medica Scandinavica
|January 1, 1988
PubMed
Summary

Family members experienced anger and discomfort when chronic dialysis was withdrawn. Open communication and counseling for families after patient death can improve end-of-life care experiences.

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Area of Science:

  • Nephrology
  • Palliative Care
  • Family Studies

Background:

  • Chronic dialysis withdrawal involves complex ethical and emotional challenges for families.
  • Understanding the psychological impact on surviving relatives is crucial for improving end-of-life care.

Purpose of the Study:

  • To investigate the emotional impact on families after discontinuing chronic dialysis.
  • To assess family involvement and satisfaction with the decision-making process and staff support.

Main Methods:

  • A written questionnaire was administered to 54 relatives of patients who died after chronic dialysis discontinuation.
  • Data collected included emotional responses, perceived patient/family involvement, and satisfaction with healthcare staff.

Main Results:

  • Relatives reported significant anger and discomfort, particularly when dialysis was stopped due to procedural stress rather than medical complications.
  • Family members perceived themselves and the patient as primary decision-makers.
  • Healthcare staff received mixed reviews, with nurses and social workers rated higher for support post-decision, while physicians were criticized for poor communication.

Conclusions:

  • Enhanced communication, increased openness about complications, and dedicated family counseling are recommended to support families during and after dialysis withdrawal.
  • Addressing family concerns proactively can mitigate negative emotional outcomes and improve the grieving process.
Keywords:
Death and EuthanasiaEmpirical ApproachHennepin County Medical Center (MN)

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