Lessons Learned from Developing Plain Language Summaries of Research Studies

Area of Science:

• Health Services Research
• Patient Engagement
• Scientific Communication

Background:

• Plain language summaries enhance public comprehension and utilization of scientific research outcomes.
• The Patient-Centered Outcomes Research Institute (PCORI) developed a systematic approach to creating plain language summaries of its funded research for the general public.

Purpose of the Study:

• To describe PCORI's methodology and experiences in developing plain language summaries of research findings.
• To share lessons learned from template development and implementation for wider application.

Main Methods:

• A standardized template was created, refined through public focus group feedback.
• 272 plain language summaries of PCORI-funded studies were produced between February 2017 and March 2020.
• Summaries covered diverse health topics, including cardiovascular disease, cancer, mental health, and comparative effectiveness research.

Main Results:

• The template employs a question-and-answer format addressing rationale, methods, results, and limitations.
• Public feedback emphasized the need for relevance, credibility, and clear communication of limitations.
• Focus groups influenced template structure and wording to improve clarity and impact.

Conclusions:

• Key lessons involve maintaining consistency, strategic content prioritization, and balancing plain language with scientific accuracy.
• These insights can guide other organizations aiming to increase the accessibility of scientific research.
• Effective plain language summaries are crucial for empowering the public with research-informed health decisions.