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Lessons Learned from Developing Plain Language Summaries of Research Studies.

Maureen Maurer, Joanna E Siegel, Kirsten B Firminger

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    Patient-Centered Outcomes Research Institute (PCORI) developed plain language summaries to improve public understanding of research findings. Lessons learned focus on consistency, content prioritization, and balancing clarity with scientific precision for broader accessibility.

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    Area of Science:

    • Health Services Research
    • Patient Engagement
    • Scientific Communication

    Background:

    • Plain language summaries enhance public comprehension and utilization of scientific research outcomes.
    • The Patient-Centered Outcomes Research Institute (PCORI) developed a systematic approach to creating plain language summaries of its funded research for the general public.

    Purpose of the Study:

    • To describe PCORI's methodology and experiences in developing plain language summaries of research findings.
    • To share lessons learned from template development and implementation for wider application.

    Main Methods:

    • A standardized template was created, refined through public focus group feedback.
    • 272 plain language summaries of PCORI-funded studies were produced between February 2017 and March 2020.
    • Summaries covered diverse health topics, including cardiovascular disease, cancer, mental health, and comparative effectiveness research.

    Main Results:

    • The template employs a question-and-answer format addressing rationale, methods, results, and limitations.
    • Public feedback emphasized the need for relevance, credibility, and clear communication of limitations.
    • Focus groups influenced template structure and wording to improve clarity and impact.

    Conclusions:

    • Key lessons involve maintaining consistency, strategic content prioritization, and balancing plain language with scientific accuracy.
    • These insights can guide other organizations aiming to increase the accessibility of scientific research.
    • Effective plain language summaries are crucial for empowering the public with research-informed health decisions.