Physical Therapy in Systemic Sclerosis: The Patient Perspective.

Area of Science:

• Rheumatology
• Physical Therapy
• Patient Outcomes

Background:

• Systemic sclerosis (SSc) is a chronic autoimmune disease affecting connective tissues.
• Physical therapy (PT) plays a role in managing SSc symptoms and improving function.
• Understanding patient experiences with PT is crucial for optimizing care.

Purpose of the Study:

• To assess the utilization, satisfaction, needs, and preferences for physical therapy (PT) among patients with systemic sclerosis (SSc).

Main Methods:

• A questionnaire was administered to 405 SSc patients meeting ACR/EULAR 2013 criteria.
• 204 patients completed the survey on PT use, satisfaction, and future needs over a 2-year period.
• Data collected included types of PT, reasons for non-use, and desired future interventions.

Main Results:

• 63% of SSc patients used or were using PT, primarily for muscle strengthening, range of motion, and aerobic exercises.
• Lack of referral or knowledge prevented 39% of patients from accessing PT.
• Patients reported high satisfaction (8.2/10) and a desire for more information and continuous individual PT.
• Specific SSc hand and mouth exercises were underutilized.

Conclusions:

• Significant variation exists in PT use and content for SSc patients in primary care settings.
• Potential underuse of PT, particularly for hand and oral dysfunction, was identified.
• Initiatives are needed to enhance the quality and accessibility of PT for SSc patients.