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Research Cooperative Groups in Pediatric Palliative Care Research

Terrah Foster Akard1, Mary Jo Gilmer1

  • 1School of Nursing, Vanderbilt University, Nashville, Tennessee, USA.

Palliative Medicine Reports
|July 5, 2021
PubMed

Insights

Research cooperative groups are enhancing pediatric palliative care research through formal programs and partnerships. This collaboration expands data sharing and research community reach in palliative care.

Area of Science:

  • Palliative Care Research
  • Pediatric Health Services Research
  • Clinical Trials Networks

Background:

  • Cooperative research groups are essential for advancing palliative care.
  • There is a growing need for dedicated pediatric palliative care research.
  • Integrating pediatric palliative care requires structured collaborative frameworks.

Purpose of the Study:

  • To demonstrate formal, sustainable steps by cooperative groups in pediatric palliative care research.
  • To provide an example of innovative partnership for expanding pediatric palliative care integration.
  • To detail the benefits of cooperative group infrastructure for pediatric studies.

Main Methods:

  • Review of cooperative group initiatives in pediatric palliative care.
  • Case example of a cooperative group's partnership strategy.
  • Analysis of infrastructure and expertise sharing for pediatric studies.

Main Results:

  • Cooperative groups are establishing dedicated pediatric palliative care research programs.
  • Partnership models are being implemented to scale pediatric palliative care integration.
  • Pediatric studies gain access to established research infrastructure and expertise.

Conclusions:

  • Cooperative groups are crucial for advancing pediatric palliative care research.
  • Collaboration enhances data dictionaries, repositories, and research community engagement.
  • Sustainable models are needed to expand pediatric palliative care research capacity.

Keywords:
hospice and palliative care nursinginterdisciplinary researchpalliative carepalliative medicineresearch

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