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Ultrasonographic Evaluation of Breast Cancer-related Lymphedema
Published on: January 12, 2017
Women's experiences of living with lipedema
Catharina Melander1, Päivi Juuso1, Malin Olsson1,2
1Department of Health, Education and Technology, Luleå University of Technology, Sweden.
Abstract:
Lipedema is a chronic, progressive disease that almost exclusively affects women and often misdiagnosed as obesity or primary lymphedema. Research concerning lipedema is sparse, and there is a lack of studies focusing on women's experiences of living with the illness. We interviewed fourteen women with lipedema with the aim of describing their experiences of living with lipedema. Our results show that women felt controlled by their body, and were fat-shamed and viewed by others as a person who lacked character. They received unsupportive advice on how to manage from healthcare, and blamed themselves while striving to take responsibility.
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