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Bereaved Parents: Insights for the Antenatal Consultation
Marlyse F Haward1, John M Lorenz2, Annie Janvier3,4
1Department of Pediatrics, Children's Hospital at Montefiore, Albert Einstein College of Medicine, Bronx, New York.
Grieving parents need personalized care and support during extremely preterm infant loss. Improving antenatal consultations with strong provider-parent relationships enhances healing and future care experiences.
Area of Science:
- Perinatal Medicine
- Psychosocial Support
- Grief Counseling
Background:
- Extremely preterm infant loss presents unique challenges for parents.
- Antenatal consultations are critical for risk communication and parental support.
- Understanding parental experiences is vital for improving care.
Purpose of the Study:
- To explore the experiences of parents who suffered extremely preterm infant loss in the delivery room.
- To understand parental perspectives on antenatal consultations.
- To identify factors that can improve care during high-risk pregnancies.
Main Methods:
- Semi-structured interviews with bereaved parents.
- Mixed-methods analysis of personal narratives.
- Qualitative exploration of patient experiences.
Main Results:
- Parents reported varied experiences, from feeling cared for to abandoned.
- Personalized information, individualized approaches, and emotional support were crucial.
- Interactions significantly impacted immediate experiences, long-term well-being, and future healthcare choices.
- Most participants had successful subsequent pregnancies.
Conclusions:
- Antenatal consultations require personalization, strong caregiver relationships, and supportive institutional practices.
- Balancing cognitive and affective needs is essential.
- Incorporating bereaved parents' perspectives can enhance antenatal care.
- Trusting provider-parent partnerships are key for effective risk communication.
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