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The landscape of systemic lupus erythematosus in Brazil: An expert panel review and recommendations
Evandro Mendes Klumb1, Morton Scheinberg2, Viviane Angelina de Souza3
1Rheumatology Department, Universidade do Estado do Rio de Janeiro (UERJ), Rio de Janeiro, Brazil.
Insights
Access to innovative diagnosis and treatment for systemic lupus erythematosus (SLE) and lupus nephritis (LN) in Brazil is limited. This review offers recommendations to overcome these barriers for public healthcare patients.
Area of Science:
- Rheumatology
- Nephrology
- Public Health
Background:
- Systemic lupus erythematosus (SLE) and lupus nephritis (LN) require timely diagnosis and treatment.
- Patients in Brazil's public healthcare system face significant barriers to accessing innovative care.
- Innovation adoption in healthcare is crucial for improving patient outcomes.
Purpose of the Study:
- To identify barriers to accessing SLE and LN diagnosis and treatment in Brazil's public healthcare system.
- To develop recommendations for implementing innovative diagnostic tools and treatments for SLE/LN.
- To address impediments to technology adoption in managing SLE/LN.
Main Methods:
- A consensus-based approach was used, involving a panel of Brazilian SLE/LN experts.
- Experts addressed key questions regarding access to care through a multi-day conference.
- Responses were refined through multiple drafts and discussions to achieve group consensus.
Main Results:
- Specific, realistic recommendations were proposed for implementing innovative diagnostic and treatment access for SLE/LN in Brazil.
- The recommendations aim to overcome barriers and impediments to technology adoption.
- Multidisciplinary care for SLE/LN necessitates stakeholder collaboration.
Conclusions:
- There is a critical need to expand access to innovative diagnostic tools and treatments for SLE/LN globally, particularly in countries like Brazil.
- The presented recommendations can guide new technology adoption strategies in similar healthcare settings.
- Addressing access issues for SLE/LN is an urgent global health demand.
Purpose:
The objective of this review is to address the barriers limiting access to diagnosis and treatment of systemic lupus erythematosus (SLE) and lupus nephritis (LN) in Brazil, specifically for patients in the public healthcare system, arguably those with the least access to innovation.
Design:
A selected panel of Brazilian experts in SLE/LN were provided with a series of relevant questions to address in a multi-day conference. During the conference, responses were discussed and edited by the entire group through numerous drafts and rounds of discussion until a consensus was achieved.
Results:
The authors propose specific and realistic recommendations for implementing access to innovative diagnostic tools and treatment alternatives for SLE/LN in Brazil. Moreover, in creating these recommendations, the authors strived to address barriers and impediments for technology adoption. The multidisciplinary care required for SLE/LN necessitates the collective participation of all involved stakeholders.
Conclusion:
A great need exists to expand the adoption of innovative diagnostic tools and treatments for SLE/LN not only in Brazil but also in most countries, as access issues remain an urgent demand. The recommendations presented in this article can serve as a strategy for new technology adoption in other countries in a similar situation.
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