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Using Telerehabilitation to Deliver a Home Exercise Program to Youth With Arthrogryposis: Single Cohort Pilot Study
Marianne Gagnon1,2, Gabriela Marino Merlo1, Rita Yap1
1Shriners Hospitals for Children-Canada, Montreal, QC, Canada.
Journal of Medical Internet Research
|July 13, 2021
Summary
Telerehabilitation is a feasible way to deliver home exercise programs (HEP) for youth with Arthrogryposis multiplex congenita (AMC). This approach showed promising results in helping young patients achieve personalized goals and improve physical activity.
Area of Science:
- Pediatric Rehabilitation
- Musculoskeletal Disorders
- Digital Health Interventions
Background:
- Arthrogryposis multiplex congenita (AMC) involves joint contractures and muscle weakness, limiting daily activities in youth.
- Frequent physical therapy is crucial for managing AMC, but geographical barriers can hinder access to specialized care.
- Telerehabilitation presents a potential solution for consistent follow-up, yet research in pediatric musculoskeletal disorders is limited.
Purpose of the Study:
- To evaluate the feasibility of using telerehabilitation to deliver a home exercise program (HEP) to youth with AMC.
- To explore the effectiveness of the telerehabilitation-delivered HEP as a secondary objective.
Main Methods:
- Recruited 11 youths (8-21 years) with AMC for a 12-week HEP delivered via telerehabilitation.
- Assessed outcomes using questionnaires (PAQ-A, PODCI, APAT) and virtual goniometry for active range of motion (ROM).
- Utilized Goal Attainment Scale for individualized goals and collected data on adherence and withdrawal rates.
Main Results:
- 7 participants completed the HEP, demonstrating good satisfaction and adherence (2.04 sessions/week).
- High reliability (ICC=0.985) was found for virtual goniometry.
- 12 of 15 individualized goals were achieved, with significant improvements in pain and physical activity.
Conclusions:
- Remote delivery of HEP via telerehabilitation is feasible for youth with AMC.
- The intervention shows promise for improving goal achievement and physical function in this population.
- Further validation through a randomized controlled trial is recommended.
