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An international policy on returning genomic research results
Anna C F Lewis1,2,3, Bartha Maria Knoppers4, Robert C Green5,6,7,8
1E J Safra Center for Ethics, Harvard University, 124 Mount Auburn Street, Suite 520 N, Cambridge, MA, 02138, USA. annalewis@fas.harvard.edu.
Abstract:
The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The policy acknowledges the potential medical benefits to millions of individuals who are participating in genomics research. It ties the pace of implementation to each country's clinical standards, including for the return of secondary findings, and urges funders to set aside resources to support responsible return.
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