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Getting what is needed, when it's needed: Sharing information, knowledge, and know-how in a Collaborative Learning
Christian Keck1, David M Hartley1,2, Mary Havens1
1Cincinnati Children's Hospital, James M. Anderson Center for Health Systems Excellence Cincinnati Ohio USA.
Learning Health Systems
|July 19, 2021
Summary
Engaging patients and families in Collaborative Learning Health Systems (CLHS) significantly boosts the creation and use of health information resources. This approach enhances healthcare delivery and patient outcomes by fostering resource sharing.
Area of Science:
- Healthcare Improvement
- Collaborative Learning Health Systems
- Patient Engagement
Background:
- Collaborative Learning Health Systems (CLHS) enhance healthcare outcomes by fostering stakeholder collaboration.
- Sharing medical and non-medical resources (information, knowledge, and knowhow [IKK]) is crucial for timely access to support and innovation.
- Effective resource matching improves diagnosis, treatment, and patient support.
Purpose of the Study:
- To describe efforts within ImproveCareNow, a CLHS for pediatric inflammatory bowel disease (IBD), to increase patient and family engagement in creating and accessing IKK.
- To identify challenges encountered during these engagement efforts.
Main Methods:
- Utilized outreach strategies including trusted messengers, community organizing, and digital platforms (website, social media, email).
- Implemented a measurement system to track progress in IKK production and access.
- Incorporated community feedback to supplement quantitative data.
Main Results:
- Patient and family production of IKK increased by a factor of 2.7.
- Resource utilization and awareness among patients and families increased by factors of 4.1 and 4.0, respectively.
- Identified challenges related to measurement and scaling of engagement efforts.
Conclusions:
- It is feasible to intentionally increase patient and caregiver involvement in CLHS.
- Active engagement facilitates the production and sharing of resources to improve health outcomes.
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