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Helping Families Thrive: Co-Designing a Program to Support Parents of Children with Medical Complexity
Chantal Krantz1, Michele Hynes2, Amélie DesLauriers3
1The manager of Development and Rehabilitation, CHEO in Ottawa, ON. Chantal has over 20 years of management experience and a keen interest in system integration and care coordination to improve health outcomes for children, youth and their families. Skilled in stakeholder engagement and project management, she has a proven track record of strategic thinking and executing in the here and now. She can be contacted at ckrantz@cheo.on.ca.
Abstract:
Families of children with medical complexity (CMC) face significant challenges beyond those related to caring for their child's medical condition. Parents of CMC report a variety of concerns impacting their social, emotional and financial well-being. This paper details how CHEO, community organizations and parents co-designed and evaluated the Navigator Program. Through system navigation, peer support and knowledge navigation, the program offers emotional, social and economic support for parents struggling to keep up with the demands of having CMC. A best practices toolkit also provides resources to help others better support these unique families locally, provincially and nationally.
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