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Pediatric Palliative Care.
Benjamin Moresco1, Dominic Moore1
1Division of Pediatric Palliative Care, Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, Utah, USA.
Hospital Practice (1995)
|August 4, 2021
Summary
Pediatric Palliative Care (PPC) offers crucial support for children with serious illnesses, addressing complex needs from birth through young adulthood. Research highlights PPC
Area of Science:
- Pediatric Palliative Care (PPC)
- Medical Subspecialty
- Childhood Illness Research
Background:
- PPC addresses serious illnesses and terminal diagnoses in children, from perinatal stages to young adulthood.
- It supports patients and families facing complex chronic diseases and malignancies.
- The field encompasses unique challenges like prognostic uncertainty and symptom burden.
Purpose of the Study:
- To describe unique populations within Pediatric Palliative Care.
- To outline distinct areas of current PPC research.
- To illustrate the evolution and value of PPC.
Main Methods:
- Review of qualitative and quantitative research in PPC.
- Analysis of the unique aspects of the pediatric serious illness experience.
- Examination of PPC's expanding role and impact.
Main Results:
- PPC addresses prognostic uncertainty, symptom burden, advance care planning, hope, end-of-life care, concurrent care, and support for staff and siblings.
- Research has explored these unique aspects over the past 20 years.
- PPC services are expanding, with teams providing education and skills training.
Conclusions:
- PPC has evolved into a continuum of support, improving outcomes for families, hospitals, and communities.
- It is a collaborative, educational, and interdisciplinary specialty.
- PPC providers offer advanced communication, symptom management, and quality-of-life expertise.
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