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Published on: July 19, 2019
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[Case reports of deceased patients]
Corrette M C Ploem1,2, Marieke A R Bak3, Gabor E Linthorst4
1Amsterdam UMC, locatie AMC,afd. Ethiek, Recht en Humaniora, Amsterdam.
Nederlands Tijdschrift Voor Geneeskunde
|August 4, 2021
Summary
Patient case reports are vital for education and research but require strict privacy. When patient anonymity is uncertain or consent is unobtainable, careful ethical review is essential for publication.
Area of Science:
- Medical Ethics
- Scientific Publishing
- Patient Privacy
Background:
- Patient case reports are crucial for medical education and research.
- Protecting patient privacy is paramount in all publications.
- The primary principle is ensuring near-complete patient anonymity.
Observation:
- Anonymity may not always be fully achievable or certain.
- Informed patient consent is required if anonymity is doubtful.
- Challenges arise when consent cannot be obtained (e.g., deceased patients, unknown whereabouts).
Findings:
- Publication without explicit consent necessitates a thorough ethical evaluation.
- Authors and editorial boards must carefully weigh all interests involved.
- Consultation with next of kin may be considered in specific circumstances.
Implications:
- Establishes guidelines for publishing sensitive patient information ethically.
- Balances the need for scientific knowledge dissemination with patient rights.
- Provides a framework for editorial decision-making in complex consent scenarios.

