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Fetal Cardiac Services during the COVID-19 Pandemic: How Does It Affect Parental Counseling?
Alexander Kovacevic1, Stefan Bär2, Sebastian Starystach2,3
1Department of Pediatric and Congenital Cardiology, Heidelberg University Hospital, 69120 Heidelberg, Germany.
Insights
The COVID-19 pandemic increased parental anxiety and uncertainty regarding fetal congenital heart disease (CHD) diagnoses. Parents counseled during the pandemic showed a greater need for accessible information on fetal heart disease.
Area of Science:
- Cardiology
- Obstetrics
- Psychology
Background:
- The COVID-19 pandemic has broadly impacted healthcare services.
- Fetal cardiac services and parental counseling for congenital heart disease (CHD) may be indirectly affected.
- Assessing these impacts is crucial for maintaining quality patient care.
Purpose of the Study:
- To evaluate the effects of the COVID-19 pandemic on parental counseling for fetal congenital heart disease (CHD).
- To compare parental counseling experiences and outcomes before and during the pandemic.
Main Methods:
- A multicenter study involving 226 parents from four national tertiary care centers.
- Utilized a validated questionnaire to assess counseling success and parental emotional states.
- Compared outcomes for 169 parents counseled before the pandemic and 57 during the pandemic.
Main Results:
- Overall counseling success rates did not significantly differ between pre-pandemic and pandemic groups.
- Parents counseled during the pandemic reported significantly higher levels of concern and uncertainty regarding their child's diagnosis, therapy, and outcome (p=0.025, p=0.044).
- There was a significantly increased parental demand for written and/or online information on fetal heart disease during the pandemic (p=0.034).
Conclusions:
- The COVID-19 pandemic negatively impacts the effectiveness of parental counseling for fetal CHD, likely by altering parental perceptions.
- Increased parental anxiety and information needs necessitate adaptations in counseling strategies.
- Innovative approaches like virtual reality or online conferences may enhance fetal cardiac services during critical periods.
Abstract:
The COVID-19 pandemic impacts health care providers in multiple ways, even specialties that do not seem to be affected primarily, such as fetal cardiac services. We aimed to assess the effects on parental counseling for fetal congenital heart disease (CHD). In this multicenter study, we used a validated questionnaire. Parents were recruited from four national tertiary medical care centers (n = 226); n = 169 had been counseled before and n = 57 during the pandemic. Overall counseling success including its dimensions did not differ between the two groups (p = n.s.). However, by applying the sorrow scale, we could demonstrate that parents counseled during the pandemic were significantly more concerned (p = 0.025) and unsure (p = 0.044) about their child's diagnosis, therapy and outcome. Furthermore, parents expressed a significantly increased need for written and/or online information on fetal heart disease (p = 0.034). Other modifiers did not affect counseling success (p = n.s.). We demonstrate that the COVID-19 pandemic impacts effectiveness of parental counseling for fetal CHD, possibly by altering parental perceptions. This needs to be taken into consideration when counseling. Implementing alternative and innovative approaches (e.g., online conference or virtual reality tools) may aid in facilitating high-quality services in critical times such as in the present pandemic.
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