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Fast-Tracking Health Data Standards Development and Adoption in Real-World Settings: A Pilot Approach
Allison F Dennis1, P Jon White2,3, Teresa Zayas-Cabán1
1Office of the National Coordinator for Health Information Technology, Washington, District of Columbia, United States.
Pilot projects are crucial for health data standards development, revealing implementation challenges and guiding future advancements. The Office of the National Coordinator for Health Information Technology (ONC) uses these pilots to ensure practical, fit-for-purpose standards.
Area of Science:
- Health Informatics
- Health Data Standards
- Standards Development
Background:
- Pilot-testing is essential in standards development for practical implementation insights.
- Health data standards implementation is often complex, necessitating oversight by the Office of the National Coordinator for Health Information Technology (ONC).
Purpose of the Study:
- To inform readers about the complexities of developing, implementing, and advancing health data standards.
- To guide stakeholders in evaluating new standards through pilot projects.
Main Methods:
- ONC identifies needs via landscape reviews, selects testing approaches, and identifies use cases and pilot sites.
- Pilot projects are categorized by their focus: genetic data, accelerating development, and clinical data reuse.
Main Results:
- Pilot projects reveal practical implementation challenges before widespread adoption.
- Collaboration among stakeholders, standards development organizations, and end-users ensures standards are practical and fit for purpose.
Conclusions:
- ONC's pilot approach identifies implementation difficulties and informs scaling strategies.
- Pilot projects accelerate the development of communities of practice and disseminate lessons learned effectively.
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