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Patients requiring pediatric palliative care for advanced heart disease in France: A descriptive study

C La Fay1, P Le Moine2, L Blanc3

  • 1ERRSPP PACA, Timone Children's Hospital, AP-HM, 264 rue Saint-Pierre, 13385 Marseille, France.

Archives De Pediatrie : Organe Officiel De La Societe Francaise De Pediatrie
|August 17, 2021
PubMed

Insights

Pediatric palliative care (PPC) teams support children with advanced heart diseases (AHD), primarily for ethical reasons and home care. Interventions are holistic, emphasizing family support and care coordination.

Area of Science:

  • Pediatric Cardiology
  • Palliative Care Medicine

Background:

  • Pediatric palliative care (PPC) teams improve quality of life for children with life-limiting conditions.
  • Limited understanding exists regarding PPC interventions in advanced heart diseases (AHD).

Purpose of the Study:

  • To elucidate the timing, reasons, and nature of PPC team interventions for children with AHD.

Main Methods:

  • Retrospective nationwide survey of PPC teams in France.
  • Analysis of all patients referred for cardiologic conditions in 2019.

Main Results:

  • 18 AHD patients received PPC consultations; 6 had cardiomyopathy, 12 had congenital heart disease (CHD).
  • Referrals were mainly for ethical considerations (50%) and home-based care organization (28%).
  • PPC provided family support, home care, care coordination, and symptom management.

Conclusions:

  • Ethical considerations are a primary driver for PPC referral in AHD.
  • PPC interventions adopt a holistic care model.
  • Further development of prospective outcomes measurement and partnerships is recommended.
Abstract

Keywords:
Advanced heart diseaseCardiologyPalliative carePediatric

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