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Published on: February 11, 2017
Psychological Well-Being of Parents of Very Young Children With Type 1 Diabetes - Baseline Assessment
Carine de Beaufort1,2, Ineke M Pit-Ten Cate3, Ulrike Schierloh1
1Diabetes & Endocrine Care Clinique Pediatrique (DECCP)-Pediatric Clinic, Pediatric Clinic/Centre Hospitalier de Luxembourg DECCP, Luxembourg, Luxembourg.
Insights
Parental well-being in type 1 diabetes is linked to fear of hypoglycemia and child behavior. Early screening for these factors is crucial for intervention in pediatric diabetes care.
Area of Science:
- Pediatric Endocrinology
- Child Psychology
- Parental Mental Health
Background:
- Type 1 diabetes in children imposes a significant burden on parents.
- A pilot study assessed parental well-being, fear of hypoglycemia, and child behavior in this population.
Purpose of the Study:
- To investigate the associations between fear of hypoglycemia, parental well-being, and child behavior in young children with type 1 diabetes.
- To inform potential interventions for families managing pediatric type 1 diabetes.
Main Methods:
- Parents of children with type 1 diabetes completed baseline questionnaires.
- Validated instruments included the Hypoglycemia Fear Survey (HFS), WHO-5 Well-being Index, Epworth Sleepiness Scale, and Strength and Difficulties Questionnaire (SDQ).
Main Results:
- Parental well-being showed a negative association with total HFS scores and child behavior difficulties.
- Higher parental well-being correlated positively with child's age and diabetes duration.
- No significant association was found between HFS, parental well-being, daytime sleepiness, and HbA1c levels.
Conclusions:
- Routine screening for parental well-being, hypoglycemia fear, and child behavior is recommended in pediatric type 1 diabetes care.
- Early identification can facilitate timely interventions to support families.
Background:
Type 1 diabetes in young children is a heavy parental burden. As part of pilot phase of the KIDSAP01 study, we conducted a baseline assessment in parents to study the association between hypoglycemia fear, parental well-being and child behavior.
Methods:
All parents were invited to fill in baseline questionnaires: hypoglycemia fear survey (HFS), WHO-5, Epworth Sleepiness Scale and Strength and Difficulties Questionnaire (SDQ).
Results:
24 children (median age: 5-year, range 1-7 years, 63% male, mean diabetes duration: 3 ± 1.7 years) participated. 23/24 parents filled out the questionnaires. We found a higher score for the hypoglycemia fear behavior 33.9 ± 5.6 compared to hypoglycemia worry 34.6 ± 12.2. Median WHO-5 score was 16 (8 - 22) with poor well-being in two parents. Median daytime sleepiness score was high in five parents (>10). For six children a high total behavioral difficulty score (>16) was reported. Pro social behavior score was lower than normal in six children (<6). Parental well-being was negatively associated with HFS total (r = - 0.50, p <.05) and subscale scores (r = - 0.44, p <.05 for HFS-Worry and HFS-Behavior), child behavior (r = - 0.45, p = .05) and positively with child age and diabetes duration (r = 0.58, p <.01, r = 0.6, p <.01). HFS, parental well-being nor daytime sleepiness are associated with the HbA1c.
Conclusion:
Regular screening of parental well-being, hypoglycemia fear and child behavior should be part of routine care to target early intervention.
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