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Decision-Making Involvement, Self-Efficacy, and Transition Readiness in Youth With Sickle Cell Disease
Nursing Research
|September 1, 2021
Summary
Preparing adolescents and young adults with sickle cell disease for healthcare transition is crucial. Increased AYA involvement in decision-making may not improve readiness, but boosting self-efficacy and reducing parent involvement can enhance confidence and self-management skills.
Area of Science:
- Adolescent and Young Adult Medicine
- Hematology
- Healthcare Transition Research
Background:
- Transitioning from pediatric to adult healthcare is a critical period for adolescents and young adults (AYAs) with sickle cell disease (SCD).
- Adequate preparation for this transition is vital to mitigate risks of increased morbidity and mortality.
- Understanding factors influencing transition readiness is essential for developing effective support strategies.
Purpose of the Study:
- To investigate the associations between decision-making involvement, self-efficacy, healthcare responsibility, and transition readiness in AYAs with SCD.
- To identify key factors that promote or hinder successful transition to adult healthcare.
Main Methods:
- A cross-sectional, correlational study involving 50 family caregiver-AYA dyads with SCD.
- Data collected using validated scales: Decision-Making Involvement Scale, Sickle Cell Self-Efficacy Scale, and Readiness to Transition Questionnaire.
- Multiple linear regression analysis was employed to examine the relationships between study variables.
Main Results:
- Higher AYA involvement in decision-making correlated with increased AYA healthcare responsibility but decreased overall transition readiness.
- Self-efficacy was positively linked to transition readiness but inversely related to AYA healthcare responsibility.
- Parental involvement showed a negative association with both AYA healthcare responsibility and transition readiness.
Conclusions:
- Enhancing AYAs' decision-making involvement may improve their healthcare responsibility but not necessarily their perceived readiness for transition.
- Strategies should focus on increasing AYAs' self-efficacy and facilitating their active participation in disease management.
- Safely reducing parental involvement while fostering AYA self-management skills is crucial for a successful transition to adult healthcare.
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