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Perceived injustice in multiple sclerosis: An initial, exploratory study.

Ariel L Kidwell1, Robert W Motl1, Katie L Cederberg1

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Perceived injustice (PI) in multiple sclerosis (MS) is reliably measured by the Injustice Experience Questionnaire (IEQ). Physical MS symptoms strongly correlate with PI, while physical activity shows a negative association.

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Area of Science:

  • Neurology
  • Psychology
  • Rehabilitation Science

Background:

  • Perceived injustice (PI) is a significant factor impacting individuals with chronic conditions.
  • Understanding PI in multiple sclerosis (MS) is crucial for developing targeted interventions.
  • The Injustice Experience Questionnaire (IEQ) is a potential tool for assessing PI.

Purpose of the Study:

  • To examine the structural validity and reliability of the IEQ in a multiple sclerosis (MS) population.
  • To investigate the associations between PI scores and various psychological and physical health outcomes in MS.
  • To explore the relationship between PI and physical activity/sedentary behavior in MS.

Main Methods:

  • Recruitment of 139 participants with MS from the North American Research Committee on MS registry.
  • Administration of the Injustice Experience Questionnaire (IEQ) and other measures of anger, pain, depression, anxiety, fatigue, disability, HRQOL, physical activity, and sedentary behavior.
  • Statistical analysis to assess the structural validity, reliability, and correlations between IEQ scores and other measures.

Main Results:

  • The IEQ demonstrated structural validity and reliability, with a Cronbach's alpha of .917 for the overall scale.
  • Strong correlations were found between PI and physical manifestations of MS, including pain, fatigue, disability, and walking impairment.
  • Anger was strongly correlated with the Blame/Unfairness subscale of the IEQ, while physical activity showed negative correlations with PI.

Conclusions:

  • The IEQ is a reliable and valid instrument for measuring PI in individuals with MS.
  • Physical symptoms of MS are significantly associated with perceived injustice.
  • Physical activity may play a role in mitigating PI by enhancing self-efficacy and counteracting negative cognitions related to disability and limitations.