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Published on: September 30, 2020
Dementia Caregivers' Experiences Engaging Supportive Services While Residing in Under-Resourced Areas
Quinton D Cotton1,2, Amy J H Kind1,3, Alice J Kim1,4
1Division of Geriatrics and Gerontology, Department of Medicine, University of Wisconsin-Madison School of Medicine & Public Health, Madison, WI, USA.
Family caregivers of people with dementia often delay service use until a crisis. Understanding their journey through seeking, initiating, and utilizing services is key to improving support, especially in disadvantaged communities.
Area of Science:
- Gerontology
- Social Work
- Caregiver Support Services
Background:
- Family caregivers of individuals with dementia require supportive services for caregiving needs.
- Research indicates consistently low rates of service utilization among these caregivers.
- Limited research has explored the impact of caregivers' environmental context on service accessibility and use.
Purpose of the Study:
- To explore the perspectives of caregivers in socially disadvantaged areas regarding the utilization of supportive services.
- To understand the factors influencing service engagement for dementia caregivers in underserved communities.
Main Methods:
- Conducted in-depth interviews with ten informal caregivers residing in socially disadvantaged areas.
- Employed thematic analysis to interpret caregiver experiences with supportive services.
Main Results:
- Caregivers often initiated service use during crises or when needs accumulated.
- A distinct sequence of service engagement stages (seeking, initiating, utilizing) was identified.
- Personal, familial, health, and social system factors significantly influenced caregiver experiences with services.
Conclusions:
- Caregivers' service needs evolve as dementia progresses.
- Gerontological social work practice can play a crucial role in facilitating supportive service use.
- Findings offer insights for future research and interventions to enhance service use in underserved communities.
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