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[National consensus created regarding PAH and CTEPH care].

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Sweden has centralized pulmonary hypertension (PH) care since 2007, fostering collaboration and knowledge sharing among PH centers. Efforts are ongoing to ensure equitable, high-quality care for all patients with pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH).

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Area of Science:

  • Cardiology
  • Pulmonology
  • Healthcare Management

Background:

  • Pulmonary hypertension (PH) care in Sweden, specifically for pulmonary arterial hypertension (PAH) and chronic thromboembolic pulmonary hypertension (CTEPH), has been structured since 2007.
  • Care is centralized within specialized PH centers at university hospitals, operating in collaboration with the Swedish Society of Pulmonary Hypertension (SveFPH).

Purpose of the Study:

  • To outline the collaborative framework for PAH and CTEPH care in Sweden.
  • To emphasize the role of SveFPH meetings in disseminating knowledge on diagnostics and treatment.
  • To promote the establishment of multidisciplinary PAH-CTEPH teams for equitable patient care.

Main Methods:

  • Structured collaboration between SveFPH and university hospital PH centers.
  • Regular biannual meetings of SveFPH to exchange knowledge on diagnostics and treatment.
  • Development of a national consensus document for PAH and CTEPH specialist centers.

Main Results:

  • Established a collaborative network for PH care since 2007.
  • Facilitated knowledge transfer through biannual SveFPH meetings.
  • Initiated a national consensus document in spring 2021 to guide care standardization.

Conclusions:

  • The Swedish model demonstrates a structured approach to managing complex conditions like PAH and CTEPH.
  • Ongoing collaboration and knowledge sharing are crucial for advancing PH diagnostics and treatment.
  • The national consensus aims to ensure equal and equivalent care across Sweden's PAH-CTEPH centers.