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Commentary: Community Knowledge for Equity in Healthcare
James Shaw1, Philina Sky2, Shivani Chandra3
1Assistant Professor, Department of Physical Therapy and Institute of Health Policy, Management and Evaluation; Research Director, Artificial Intelligence, Ethics & Health, Joint Centre for Bioethics, University of Toronto; Scientist, The Women's College Hospital Institute for Health System Solutions and Virtual Care, Toronto, ON.
Healthcare Policy = Politiques De Sante
|September 20, 2021
Summary
This study advocates for community engagement over patient engagement, emphasizing specific cultural groups and valuing community knowledge for inclusive research partnerships.
Area of Science:
- Community-based participatory research
- Health equity
- Inclusive research practices
Background:
- Existing frameworks for patient partnerships require refinement.
- Meaningful and inclusive patient partnerships are crucial for health equity.
- Research teams face challenges in deepening community engagement.
Purpose of the Study:
- To propose an evolution of patient engagement towards community engagement.
- To address challenges in building and deepening community partnerships.
- To advance the discussion on diverse and inclusive patient partnerships.
Main Methods:
- This is a rejoinder, offering conceptual points rather than empirical methods.
- It builds upon the work of Sayani et al. (2021).
- It reflects on the research team's experiences in community engagement.
Main Results:
- A proposed shift from "patient engagement" to "community engagement."
- A recommendation to engage specific cultural or geographic communities individually.
- An emphasis on deferring to and valuing community knowledge.
Conclusions:
- Rethinking terminology from "patient" to "community" engagement broadens inclusivity.
- Targeted engagement with specific communities enhances relevance and impact.
- Centering community knowledge is essential for equitable research partnerships.
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