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Retrospective Pediatric Telepalliative Care Experience.

Stephanie Schmitt1, Cris Ebby1, Ami Doshi1,2,3

  • 1Department of Pediatrics, University of California San Diego and Rady Children's Hospital, San Diego, California, USA.

Journal of Palliative Medicine
|September 22, 2021
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Summary

Pediatric telepalliative care offers convenient and safe support for families with complex medical needs. This study shows high patient satisfaction and effective communication in remote palliative care settings.

Keywords:
pediatric palliative carepediatricstelehealthtelemedicinetelepalliative care

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Area of Science:

  • Pediatric Palliative Care
  • Telehealth
  • Family-Centered Care

Background:

  • Rady Children's Hospital established a pediatric palliative care clinic with telepalliative care services in 2016.
  • Telepalliative care aims to extend specialized care to patients remotely, addressing access barriers.

Purpose of the Study:

  • To describe the demographics of parents receiving pediatric telepalliative care.
  • To assess patient and family satisfaction with telepalliative care services.
  • To explore patient and family perspectives on their telepalliative care experience.

Main Methods:

  • Retrospective review of electronic medical records for telepalliative care patients from 2016-2020.
  • Analysis of patient/family satisfaction surveys.
  • Thematic analysis of documented quotes from telepalliative care consultations.

Main Results:

  • 181 telepalliative visits were conducted for 56 pediatric patients (3 months-25 years).
  • High satisfaction reported: 92% very satisfied, 96% preferred video visits over in-person.
  • Key themes included: child advocacy, care challenges, communication, caregiver support, uncertainty, and decision-making.

Conclusions:

  • Pediatric telepalliative care serves a diverse patient population with varying needs and goals of care.
  • Telepalliative care demonstrates potential for high-quality care delivery and patient satisfaction.
  • Remote settings facilitate open communication regarding complex care challenges, support, and decision-making.