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End-of-Life Doulas: Documenting Their Backgrounds and Services.

Amy Dellinger Page¹, Jonelle H Husain¹

¹Department of Sociology, Appalachian State University, Appalachian State University, Boone, North Carolina, United States.

|September 22, 2021

Summary

This study explores the characteristics of trained end-of-life doulas (EOLDs). Findings reveal EOLDs are predominantly white, female professionals, often employed outside their doula work, providing essential comfort and support.

Keywords:

death death work end-of-life doulas palliative care

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Area of Science:

End-of-life care
Complementary medicine
Sociology of health

Background:

End-of-life doulas (EOLDs) offer complementary care, focusing on patient and family comfort.
This study examines the demographics, backgrounds, and services of INELDA-certified EOLDs.

Purpose of the Study:

To document the demographic characteristics of trained and certified end-of-life doulas.
To understand the backgrounds and employment of end-of-life doulas.
To detail the services provided by end-of-life doulas and their experiences.

Main Methods:

An exploratory study utilizing surveys from 618 end-of-life doulas.
Follow-up qualitative interviews were conducted with 39 respondents.

Main Results:

Trained end-of-life doulas are predominantly white (91.4%) and female (90.4%).
Most doulas hold Bachelor's (32.3%) or Master's (32.4%) degrees and are employed elsewhere (70.1%).
Qualitative data revealed specific services offered and challenges/benefits of integrating with traditional healthcare.

Conclusions:

Trained end-of-life doulas possess distinct demographic profiles and professional backgrounds.
Understanding these characteristics is crucial for integrating EOLD services within broader end-of-life care frameworks.
Further research can explore the impact and integration of EOLDs in diverse healthcare settings.