[Clinical guidelines for the managment of intestinal failure secondary to pediatric short bowel syndrome]
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Published on: December 1, 2012
Adriana Fernández1, Virginia Desantadina2, Martín Balacco3
1Hospital Interzonal de Agudos Especializado en Pediatría (HIAEP) Sor María Ludovica, La Plata, Argentina. adrianafernandezlp@gmail.com.
Insights
Pediatric intestinal failure due to short bowel syndrome requires expert multidisciplinary care. This guideline offers evidence-based recommendations for managing these complex cases, improving patient outcomes.
Area of Science:
- Pediatric Gastroenterology
- Clinical Nutrition
- Surgical Management
Background:
- Intestinal failure (IF) secondary to short bowel syndrome (SBS) in children is a rare condition with significant morbidity and mortality.
- Optimal management necessitates a multidisciplinary team approach to minimize complications and enhance intestinal rehabilitation.
- Current lack of standardized guidelines poses challenges in managing these complex pediatric patients.
Purpose of the Study:
- To develop comprehensive clinical guidelines for the management of pediatric intestinal failure and short bowel syndrome.
- To establish a framework for adequate patient management by providing basic scientific knowledge.
- To address key aspects including definitions, epidemiology, nutrition, and treatment modalities.
Main Methods:
- A modified Delphi methodology was employed, involving 16 experts in the field.
- Meetings were convened under the auspices of the Argentinian Association of Enteral and Parenteral Nutrition.
- Key topics analyzed included definitions, epidemiology, enteral and parenteral nutrition, pharmacological and surgical treatments, and referral criteria for intestinal rehabilitation.
Main Results:
- The guideline addresses critical areas for managing pediatric IF/SBS.
- It synthesizes expert consensus on definitions, epidemiology, and nutritional support (enteral and parenteral).
- Recommendations cover pharmacological and surgical interventions, alongside criteria for specialized intestinal rehabilitation referrals.
Conclusions:
- The developed clinical guideline provides essential scientific knowledge for healthcare providers, institutions, patients, and families.
- Implementation of these guidelines can lead to improved and standardized care for pediatric patients with IF/SBS.
- This initiative aims to optimize intestinal rehabilitation and reduce morbimortality associated with this condition.
Abstract:
Intestinal failure secondary to short bowel syndrome in pediatrics, is a rare condition with high morbimortality. A follow up multidisciplinary team is necessary to minimize complications and optimize the intestinal rehabilitation. There are no gold standard guidelines for the management of this group of complex patients. The development of clinical guidelines may contribute for an adequate management of patients with intestinal failure and short bowel syndrome. This Clinical Guideline for the Management was developed by 16 experts based on modified Delphi methodology. The meetings were held at the Argentinian Association of Enteral and Parenteral Nutrition (Asociación Argentina de Nutrición Enteral y Parenteral); the topics analyzed were definitions, epidemiology, enteral and parenteral nutrition, pharmacological and surgical treatments, and criteria for referring patients to intestinal rehabilitation centers. The document is aimed to provide basic scientific knowledge for medical institutions, health providers, healthcare providers, patients and families.
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